On Monday, March 9, 2020, I (Constance Benson) had the pleasure of co-hosting with Mia Robinson (filling in for Jennifer Worrell) for the 5th episode of 'Do I Look Sick?', on Manifest TV & hosted by Status Network.
In this episode, we discussed several medications that are currently being used to treat people with Sickle Cell Disease. We also discussed my bone marrow transplant, stem cell transplants and we touched on Dr. Sebi's suggestions for Sickle Cell Disease.
On June 7, 2017, Constance Benson was invited to Capitol Hill in Washington, D.C. to speak at the Sickle Cell Disease & Gene Editing briefing. Her purpose was to put a face to the disease and advocate for continued funding for the treatment and curing of Sickle Cell Disease, to the people who have the power to increase funding and promote the treatment of SCD. Special thanks to Be The Match, Congress, NIH, The American Society of Hematology, The American Society of Gene & Cell Therapy & SCDAA.
I was on a panel at the Stellar Sickle Cell Symposium on October 8, 2016, with four other adults who were cured of Sickle Cell Disease. This clip is of me sharing some of my story with the audience.
The other four individuals on the panel were cured of Sickle Cell Disease via Bone Marrow Transplants. One woman had her BMT 18 months prior to the panel, another had hers 12 months prior to the panel and two of the men had their transplants 17+ years ago.
Video courtesy of the awesome Miss Limah!
This was one of the very first interviews that I did. I was nervous. (I still get nervous).
Yvette Pegues was an absolute professional and I would love to do this again!